Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Posts Tagged ‘Star Cranial Center of Excellence’

Baby Miguel Part 2…

Posted by mymaysa on May 13, 2010

I just want to share with the world what a well fitting clear helmet should look like.  If you look at some of my earlier posts, and compare it to this one, you’ll notice that I am not only comparing apples to oranges.  I am comparing apples to bananas…

Baby Miguel was back here last week.  His daddy and mommy brought him.  I didn’t know they were coming again and I didn’t have my camera, but we figured out something else using a Flip camera.  So, here is how his helmet looks like on him.  Now, look further down and see how Maysa’s helmet from ECA looked like on her.  Apples and bananas, I tell you!

I enjoyed seeing Baby Miguel again and cannot get over his composure.  He has it all together, it is amazing!  Oh! and yes, his head is reshaping beautifully.  So happy for mom and dad, and Baby Miguel of course…

On a somewhat similar note, a co-worker’s daughter brought in her son yesterday.  They have been suspecting that he has a “flat head” as well but weren’t sure.  I actually got to meet the other little guy and fair enough, he showed textbook characteristics of brachycephaly to me.  I gave mom lots of advice and recommendations as the ped she saw said that it will round out eventually…  I know the story too well, I told her.

Posted in eastern cranial affiliates, Orthomerica, Pictures, Star Cranial Center of Excellence | Tagged: , , , , , , , , | Leave a Comment »

Baby Miguel…

Posted by mymaysa on April 12, 2010

I saw Baby Miguel on Friday.  His daddy brought him to work.  Miguel is 6 months old and has/had craniosynostosis.  Despite his parents concerns, he went undiagnosed by his pediatricians for a long time.  When his daddy first told me that he was going to have to wear a helmet, the clear type, I got worried.  Then he explained to me that he didn’t have plagio or brachy and that post operation, he would have to wear one of the clear ones from Starcranial in Columbia, MD.  I felt much better then.  I have nothing but good things to say about that place and the people who work there.  I knew that as long as everything went well with the operation, he would be in good hands with Laura Plank and Orthomerica.

So, it’s been just about a month since Miguel got his helmet.  When I saw him on Friday (unexpectedly), I had to hold him and give him an extra special hug.  Of course, after drooling over his cute little face and chubby puffy cheeks, I checked out his helmet.  It was a beautiful helmet.  The shape of that helmet was flawless.  It camed down just barely above his eyebrows.  The contour around his ears WAS traced right around his ears.  It came ALL THE WAY down to the base of his neck.  It was beautifully and perfectly ROUND in the back and just the right width and length.  A perfect ratio!  It also had a few holes and the pads (two at the sideburns and two in the back were extremely soft and clean).

Really, I almost cried I was so happy to see him wearing such a well-fitted helmet.  I haven’t seen Miguel’s latest scan.  Daddy keeps forgetting to swing it by, but from what he told me, he’s made great progress already.  To tell you the truth, when daddy took off the helmet for me to look at, Baby Miguel’s head looked pretty darn good to me!  He needs to grow in width a little more, but considering his age, I have absolutely no doubt that nobody will ever be able to tell that he’s ever had surgery or that he had to wear a helmet (for a year, they are saying).

I’ve never given a really good review about passive helmets, namely Maysa’s passive helmets (kidcaps) from ECA.  However, thumbs up for the one from Starcranial in Columbia, MD.  I wish I could put the two side by side.  It’s like night and day.  Maybe I’ll ask daddy to let me have it for a photo shoot once he’s done with it…

Posted in eastern cranial affiliates, Orthomerica, Star Cranial Center of Excellence | Tagged: , , , , , , , , | Leave a Comment »

Week 13 in DOC band 2

Posted by mymaysa on April 27, 2009

Maysa went in for another adjustment today.  Amber saw us and was accompanied by a colleague from the Connecticut Office.  Of course, I can’t remember her name.  I am so bad with names…  We briefly talked about Tim’s report and how neat it was looking at things from a different perspective.  She asked me how happy I was about Maysa’s progress.  I told her that I WAS happy.  After the disappointing results we got from Eastern Cranial Affiliates, and the actual improvement in Maysa’s headshape since the DOC bands, I HAVE to be happy.

I thought long and hard about asking Amber once again about shaving the band on the back right side, but after looking at Maysa’s head from every possible angle I truly can’t see the “5mm” plagio that’s still left.  If I can’t see it while knowing what I am looking for, then nobody else out there will either, unless it’s an extremely observant plagio parent or a orthotist.  I think that a lot of it has to do with the fact that her head is no longer flat in the back.  It is now round.  It has a curve that hasn’t been there since she was about 6 weeks old.  Amber gave Maysa a little more room in the band by shaving a little more off of it.  I believe that she only shaved the middle back right side of it but I am not sure.

Also, looking at one of the top view pictures on Tim’s report, I was able to overlay it on the scan from Orthomerica and draw the two diagonal lines.  I came up with the same 5mm diagonal difference, however, her Cephalic Index was much lower.  There were two top view pictures of Maysa’s head on the report.  One was similar to a top view picture I would take of her in the tub with her hair all wet, and the other one was a slice top view of it similar to the one that I obtained from Orthomerica.  In the first top view picture, the worse Cephalic Index I could come up with after several measurements was 87.5%.  In the slice view, the worse Cephalic Index I came up with was 91.25%.  This is much lower that the 93% I was given in April.  So I went back to the graphs from Orthomerica, took a cm ruler and measured the CI of the last three reports I got from them.  Here are their measurements and mine:

October 2008 CI:
– Orthomerica -> 98.3%
– My measurements -> 98%

January 2009 CI:
– Orthomerica -> 93.3%
– My measurements -> 92.5%

April 2009 CI:
– Orthomerica -> 93%
– My measurements -> 91.7%

Really, all I did was take a cm ruler and measure the length and width lines on the graph from Orthomerica to obtain the CI.  Have you STARband people tried that before?  I know that it’s completely silly to be competing with computer technology, but I felt so good being able to measure her CI at 91.7% by measuring her graph.  It is also closer to the 91.25% I measured on the picture from Tim’s report from Cranial Tech.  I’ll add to that that this is really what I feel her CI is at this point: around the 91% mark.

Also, we have one more adjustment left scheduled for May 11th.  In four weeks we have our exit appointment.  It will be right around Memorial day weekend, a day to remember.

Posted in Cranial Technologies, doc band, Maysa, Orthomerica | Tagged: , , , , , , , , , , , , , , , , , , | 1 Comment »

The two reports since the DOC bands

Posted by mymaysa on April 8, 2009

Alright, so here are the two reports I got yesterday. 

The first one shows the comparison between January 5th and April 7th (3 months difference).  Just so you know, Maysa got into her second DOC band on February 2nd.

January 5th to April 7th, 2009

January 5th to April 7th, 2009

 
The second one shows the comparison between October 13th and April 7th (almost 6 months).  Maysa got her first DOC band on October 31st. 

October 13th, 2008 to April 7th, 2009

October 13th, 2008 to April 7th, 2009

 

I have to say that I am very happy with the fact that her width has practically remained the same and that her growth has mainly been in her cranial length.  According to another report, the first passive helmet she was in did nothing to keep her head from getting wider.  The DOC bands did.  Thank you CT team!

Needless to say that after getting these reports yesterday, I contacted Amber who scheduled me in this morning at 8:00 AM.  That’s coming in another post…

Posted in Cranial Technologies, doc band, Maysa, Orthomerica, Pictures, Star Cranial Center of Excellence | Tagged: , , , , , , , , , , , , , , , | 2 Comments »

Plagio Plague

Posted by mymaysa on April 8, 2009

What a pain, what a pain… You’d think that Maysa is my first child, but no.  She is my second and I worry more about her and this plagio plague than about anything around.  At least for now.

Remember how I told you that I was taking her for another scan at Orthomerica today?  Well, I was able to take her yesterday instead (impatient me) and my head has been spinning ever since I got her latest report.

Before I get started on the report, I want to say something about Laura Plank, the orthotist at Orthomerica in Columbia, MD.  Love her a lot.  She is wonderful.  Not only does she do and take her job seriously, she is also extremely caring.  When you talk to her, you know that you are also talking to the “Mom”, not just the specialist, and that means a lot to me since most people don’t quite relate to the struggle we are faced with for the rest of our little ones lives.  She is positive too and will get you to focus on the brighter side of things…  Yet, I am worried and once again ready to battle this curse.

So, back to the reports now.  The last one she got was back on 1/05/09.  Her brachy was at 93.2%.  Her plagio was at 2.1mm.  Yesterday, 4/07/09, her brachy is at 93% (92.99%).  Her plagio at 5.1mm.  What in the world?  I thought I didn’t have to worry about plagio anymore.  I truly don’t get it.  I was expecting her brachy to be closer to 90% and her plagio to be down to 0mm.  She grew 9mm in circumference in 3 months, not much, but I was expecting more…

Laura tells me that her growth is slowing down and that her sutures are probably starting to fuse.  She says that considering her age and the 5.5 weeks left in the band not to expect much more improvement.  This is basically it.

Feel my frustration.  Help me get through this.  I am loosing my sanity!

I’ll be posting the reports in the following post.

Posted in Maysa, Orthomerica, Star Cranial Center of Excellence | Tagged: , , , , , , , , , , , , | 2 Comments »

Scheduled for Another Scan

Posted by mymaysa on February 18, 2009

I just called Orthomerica this morning. I scheduled another appointment with Laura Plank to have her scan Maysa’s head once more. She will see us on April 8th. I can’t wait to see what her head shape looks like on paper and what her numbers will tell us then. The last scan she got was on January 5th. Pray with me that her brachy is well below 90% by then.

Posted in Orthomerica, Star Cranial Center of Excellence | Tagged: , , , , , , | 1 Comment »

The three reports:

Posted by mymaysa on January 6, 2009

Alright, I had a minute to scan Maysa’s reports this morning and here they are:

The first one was taken on 6/24/08 during our initial evaluation, when we were still trying to determine what she actually had and if she would benefit from helmet treatment or not.

 STAR Scan June 2008

The second one was taken on 10/13/08 back when I had doubts about how well Maysa’s passive helmet from Eastern Cranial Affiliates was working for her.  I let you be the judge, but in my opinion and looking at the report itself, the helmet didn’t do anything about keeping her head from growing on the sides.  It didn’t correct her plagio at all either.  In fact, Laura Plank from Orthomerica, explained to me that looking at both scans, both her brachy and plagio got worse.

STAR Scan June/October 2008

The third one shows how she’s progressed since she’s been in the DOC band and since we’ve done CST.  Her plagio is now within normal range at 2.1mm and her brachy has gone down from 98.2% to 93.2%.

STAR Scan October 2008/ January 2009

There you have it.  Love the DOC band and love the Starscanner a lot!

Posted in Cranial Technologies, CST Appointments, doc band, Maysa, Orthomerica, Pictures, Star Cranial Center of Excellence | Tagged: , , , , , , , , , , , , , | 1 Comment »

Laura Plank, thank you…

Posted by mymaysa on January 6, 2009

I took Maysa to her third scan on Monday to Orthomerica in Columbia, MD.  I couldn’t wait for my 2 o’clock appointment to come.  I made it there on time.  There was no traffic, and Maysa slept for the entire hour it took me to get there.  We went in.  She scanned her.  She showed me her report.

Thank you for putting my mind at ease.  Although I have known from the start that the DOC band was doing what it’s supposed to be doing, I just had to see it on paper in numbers and shape.

Again, thank you.

Posted in doc band, Maysa, Orthomerica, Star Cranial Center of Excellence | Tagged: , , , , , , , , , | Leave a Comment »