Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Posts Tagged ‘DSi’

DSi 1,2 and 4 side by side

Posted by mymaysa on June 3, 2009

 I went back to Cranial Technologies to take the side by side pictures of Maysa’s first, second and fourth DSi side by side. 

dsi124 back

In this first set of pictures, notice how the light reflecting on the back of her head has gotten bigger.  The bottom back of her head looks a little bumpy but that’s because of her curls.  We couldn’t tame them very much.

dsi124 front

In this second set of pictures, notice how her head got longer, eliminating the wide aspect of it. 

dsi124 top

The last DSi is a little bumpy again, because of the curls, but notice how much longer and rounder it is in the bottom back.

dsi124 left profile 

 Compare the first and the last DSi…

dsi124 right profile

Here too, notice how much rounder her head is in the back now.

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Maysa graduates, at last!

Posted by mymaysa on May 26, 2009

It was rainy, traffic was awful, we got there late and while Maysa was all smiles when we got in, she ended up throwing one of her biggest tantrums by the time she sat for the final DSi.  She was still crying and annoyed when they took her pictures and didn’t stop until her clothes were back on.  Then, she didn’t want to leave…

maysa playing examination room

maysa playing toys

maysa doc band graduate

maysa crying

maysa playing with flip

maysa car ride

Amber, our orthotist, and Cynthia, who took Maysa’s pictures, were great, as usual!  They took us right in despite our tardiness.  From the clinical anthropometric measurements that were taken 10/20/08 to 5/26/09, here are Maysa’s numbers from start to finish:

anthropometric measurements

We are absolutely positively extremely happy with the results, the service, the people and their professionalism and everything that is somehow connected to the beautiful round head of our little girl.  We can’t thank you enough.  Even my husband who at first was skeptical is now amazed at the results.  Again, thank you!

Maysa has graduated but I am not quite done posting.  There is more to come.  I am heading back to CT to take some of the side by side pictures of her three DSi.  I will be posting those in time.  I also have other things to share but I need time to put it all together so patience!

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Week 15 in DOC band 2

Posted by mymaysa on May 11, 2009

After a beautiful weekend, we woke up to rain this morning.  I thought that traffic was going to be bad but we actually got to our appointment with Amber at Cranial Technologies right on time.  We are always seen right away and I’ve loved that about them right from the start. 

Today was our last “shaving” appointment with Amber.  Maysa was extremely playful in the examination room, dancing and all.  The rocking dog and the musical flowers kept her entertained.  When Amber walked in to remove her band and take her circumference measurement, she kept shaking her head “no”.  She always does.  Then, when Amber took the band to go shave off some foam for the last time, Maysa wasn’t too happy.  It’s the first time that she’s gotten upset at her taking it away from her…

Amber came back and had shaved off the foam all the way to the plastic shell.  I truly didn’t think that we were going to get all the way down to the plastic shell before the end of the 16 weeks.  I am extremely happy with the results we got, with the fact that Maysa’s head will be free again after almost 11 months, with the fact that no one will ever be able to tell that there was ever anything wrong with her head shape.  I am so glad we were able to treat her with the DOC band.

Her next and last appointment is scheduled for May 26th.  They will again take pictures of her, do another DSi and hand measurements of her head.  I will be posting about that for sure!

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Thanks, Melanie…

Posted by mymaysa on April 29, 2009

Thanks to Melanie (one of my online Plagio parent), I now understand why I wasn’t coming up with the same measurements as those from Orthomerica.  Back when Maysa got her first scan from Orthomerica, the part where her head was the widest was right at the center horizontal line of the graph.  Her head was also the longest at the center vertical line.  I always though that the cephalic index was taken by measuring those two lines, no matter whether they were the longest or not.  Apparenlty not.  Melanie explained to me that I have to measure the widest width on her head as well as the longest length.  Since she’s been in the DOC band, Maysa’s widest width has moved down below the center horizontal line (which is what should happen as the head should be wider in the back rather than the front of the head) and that’s why I was getting different numbers.

So…  After I took my ruler again and remeasured her width in the right spot, I basically came up with the same numbers.  Her last CI was a little better using the ruler: 92.68% as opposed to 92.99%. 

I also looked back at the two pictures from Tim’s report and the CI I came up with in the sliced view was 92.4%, so quite comparable after all.  The CI I got from the whole top view of her head was more like 89.7% which tells me that her head still comes out more on the top back than the bottom back by a few millimiters.

This said, I am still really happy with the results we got this far.  Thanks Melanie for clarifying things for me!

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Week 13 in DOC band 2

Posted by mymaysa on April 27, 2009

Maysa went in for another adjustment today.  Amber saw us and was accompanied by a colleague from the Connecticut Office.  Of course, I can’t remember her name.  I am so bad with names…  We briefly talked about Tim’s report and how neat it was looking at things from a different perspective.  She asked me how happy I was about Maysa’s progress.  I told her that I WAS happy.  After the disappointing results we got from Eastern Cranial Affiliates, and the actual improvement in Maysa’s headshape since the DOC bands, I HAVE to be happy.

I thought long and hard about asking Amber once again about shaving the band on the back right side, but after looking at Maysa’s head from every possible angle I truly can’t see the “5mm” plagio that’s still left.  If I can’t see it while knowing what I am looking for, then nobody else out there will either, unless it’s an extremely observant plagio parent or a orthotist.  I think that a lot of it has to do with the fact that her head is no longer flat in the back.  It is now round.  It has a curve that hasn’t been there since she was about 6 weeks old.  Amber gave Maysa a little more room in the band by shaving a little more off of it.  I believe that she only shaved the middle back right side of it but I am not sure.

Also, looking at one of the top view pictures on Tim’s report, I was able to overlay it on the scan from Orthomerica and draw the two diagonal lines.  I came up with the same 5mm diagonal difference, however, her Cephalic Index was much lower.  There were two top view pictures of Maysa’s head on the report.  One was similar to a top view picture I would take of her in the tub with her hair all wet, and the other one was a slice top view of it similar to the one that I obtained from Orthomerica.  In the first top view picture, the worse Cephalic Index I could come up with after several measurements was 87.5%.  In the slice view, the worse Cephalic Index I came up with was 91.25%.  This is much lower that the 93% I was given in April.  So I went back to the graphs from Orthomerica, took a cm ruler and measured the CI of the last three reports I got from them.  Here are their measurements and mine:

October 2008 CI:
– Orthomerica -> 98.3%
– My measurements -> 98%

January 2009 CI:
– Orthomerica -> 93.3%
– My measurements -> 92.5%

April 2009 CI:
– Orthomerica -> 93%
– My measurements -> 91.7%

Really, all I did was take a cm ruler and measure the length and width lines on the graph from Orthomerica to obtain the CI.  Have you STARband people tried that before?  I know that it’s completely silly to be competing with computer technology, but I felt so good being able to measure her CI at 91.7% by measuring her graph.  It is also closer to the 91.25% I measured on the picture from Tim’s report from Cranial Tech.  I’ll add to that that this is really what I feel her CI is at this point: around the 91% mark.

Also, we have one more adjustment left scheduled for May 11th.  In four weeks we have our exit appointment.  It will be right around Memorial day weekend, a day to remember.

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Protected: The Mid Treatment DSi Report from Tim

Posted by mymaysa on April 24, 2009

This content is password protected. To view it please enter your password below:

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The Update

Posted by mymaysa on April 24, 2009

When Tim emailed me his report on Maysa’s progress, he also asked me not to post it online for reasons that I choose not disclose.  I have asked him if I could post some of the graphics that he included in it but again he wasn’t in favor of that.  I really wish I could.  I have been extremely happy with Maysa’s progress since she’s been in her DOC bands and I owe Cranial Technologies so much.  They have turned things around for my daughter and I am forever grateful to them.  This is why I cannot post his report.

In my next entry, I will be posting the report but it will be password protected.  I will share it with family members and close friends.  Maybe, someday, when this type of information is readily available to all CT patients I’ll be able to make it public to all.

Please, forgive me.

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Tim’s report

Posted by mymaysa on April 22, 2009

I haven’t forgotten to post about Tim’s report.  It was very informative and allowed me to view things from many different angles and perspectives.  I will post more, later, in an update.

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Week 11 in DOC band 2

Posted by mymaysa on April 13, 2009

Maysa went for another scheduled adjustment this morning.  We were seen by Sheryl and not Amber today, she was tied up with a consultation.  Sheryl looked at Maysa, felt her head, commented on how nice and round her head looked.  She put the band back on to see if it needed to be shaved again.  I asked her if it could be shaved on the back right side a little.  She said that until “Tim” reviewed her mid DSi she wasn’t allowed to shave the band there.  She said that it was a brachy band and that the protocol of those was different.  She did shave some more off of the middle back though…

She also told me that “Tim” hadn’t had a chance yet to review the mid DSi but that, as soon as he did, Amber would give me a call.  Maybe today, maybe tomorrow.  I just want some foam to be shaved off that back right side to bring down her plagio numbers.  We are starting week 11.  We have 5 weeks left in the band.

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Mid DSi

Posted by mymaysa on April 8, 2009

8:00 AM this morning, Maysa and I go in to see Amber.  She (and the whole world) knows that I regularly take Maysa to Orthomerica for scans and I’ve showed her previous ones before.  I briefly explain to her what Laura Plank showed me on the graphs yesterday and I express my concerns to her as to the fact that the numbers seem to say that her plagio has regressed by 3mm while in fact I was hoping they would be at 0mm.  We also talk about her Cephalic Index (CI) although that one didn’t get worse.  She honestly says that she is not apt or qualified to read the scans but that “Tim” (I forgot his last name) who is their tech guy in Arizona has asked her to go ahead and do a mid DSi of Maysa’s head so he can analyze the data better and comment or act upon it.  This is the first time they do a mid DSi so I do feel a little weird about it, but at the same time I appreciate how they are listening to my concerns and going the extra step to help address them.

I need to know that I (and everyone else involved) is doing everything possible to help my little Maysa.  Am I a mother or what???  Talking about being a mother, Amber’s daughter also wore a DOC band for a little while so we had a little chat about the fact that she still sees the imperfections in her head shape and that I will always see them in Maysa and others as well.  She just wishes that her daughter had as much hair as Maysa.  I totally understand that at this point, they can only help and not fix and that sooner or later, I’ll have to come to terms with it all.  I know that, but we have 5.5 weeks left in the band.  Let’s make the best of it! 

I probably won’t hear from Amber or Tim until early next week.  How many more gray hair do you think before then?  Of course, I will keep you posted!

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Maysa’s DSi 1 and 2 in Video

Posted by mymaysa on February 9, 2009

Alright, so I finally had the time to play with and upload Maysa’s DSi 1 and 2 on Youtube. The quality is not as good as the originial, but that’s the best I could do for now. At the start, Maysa is not so happy that I put her down to pick up the camcorder instead and she starts crying. We offered her a few toys but still didn’t want to have anything to do with them. Once I gave her my keys, she was fine…

Enjoy watching!

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Follow up Visit for DOC band 2 and Band Comparison

Posted by mymaysa on February 4, 2009

We had an appointment with Amber this morning. Since the second band that Maysa received on Monday is only meant to treat her brachycephaly, the protocol is a bit different. Monday and Tuesday we checked for red spots every 3 hours and for two nights she had to sleep without the band on. That was strange. Seeing her in the morning standing in her crib was quite a sight. Her hair was going in every opposite direction on her head, you would have thought that a tornado had passed through. Too bad we are always rushing in the morning or I would have captured it on camera.

The appointment went well. Amber adjusted the front part of the band where her name is and we were on our way. We’ll see her again in two weeks on February 16th. The band is sliding down Maysa’s face quite a bit, but that’s normal. It is so much rounder in the back than the first one and there is a lot of room there for her to grow. Fingers crossed…

If I were to make a comparison between the two bands, this is what I’d have to say:

DOC band 1 looks cuter. I liked how it had that cap going over the right side of her forehead. I always liked decorating that spot first. It also fit better right from the start.

DOC band 2 allows me to hold Maysa’s hair in a fountain at the top of her head. It doesn’t get all sweaty after getting trapped under the cap like with the first band. Also, DOC band 2 to is much rounder in the back. Really, if Maysa’s head rounds out that far and that much, there would be no brachy left in her. Another thing I like about DOC band 2 is that the top back of her head is completely covered as in keeping her head from growing upwards in the back.

In short, I like the curvy design of the first band, but I see the great potential of band 2.

Of course, I will post pictures when I get a chance, and yes, I am still working on uploading that video of Maysa’s DSi.

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Side by Side Comparison of DSi 1 and 2 in Pictures

Posted by mymaysa on February 2, 2009

8:00 AM this morning Maysa had an appointment with Amber.  We went to get her second DOC band.  I am so excited for her, I couldn’t sleep last night. Well this time, I brought the camcorder and the camera. Amber was kind enough to let me videotape and take pictures of the two DSi Maysa has had and now, I get a chance to post them on her blog.

For now, I can only post the pictures.  I’ll upload the video later when I get a chance to play with it and edit it a little:

DSi 1 and 2 - Top View
DSi 1 and 2 – Top View

For some strange reason, the two DSi side by side don’t show, in my opinion, how much Maysa’s head has grown in length.  However, it has and the pictures below will show it better.

dsi1and2backview1

 

Now, you’ll agree with me that this angle shows how her head has filled out at the base of her skull.  The reflection of the light and the shadow make it so obvious.  Also, notice that her head seems narrower.

DSi 1 and 2 Front View
DSi 1 and 2 Front View

In this one, you can also see how her head doesn’t look so wide.  Her head seems to have grown upwards which in turn balances things out.

DSi 1 and 2 Left Profile
DSi 1 and 2 Left Profile

In this one, you can see how her head has filled out at the base.  That’s remarkable, I think!  Look at the one below.  It is my favorite…

DSi 1 and 2 Right Profile
DSi 1 and 2 Right Profile

Ok, so now we are talking.  Bye bye flat spot on the right side.  I am so glad to see you gone.  I won’t miss you either.

So now, let’s hope that the second band, which looks different, will bring even more positive changes to my little Maysa’s head.

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Second DSi, on our way to a second DOC band:

Posted by mymaysa on January 20, 2009

We had our appointment at Cranial Technologies today in Annandale, VA. Maysa has been in her DOC band for 11 weeks now.  A second one was approved by our insurance, Kaiser Permanente, and looking at the progress that she’s made thus far, why not go for a second one?  I had really wanted to videotape Maysa’s second DSi and brought my camcorder with me.  My husband had assured me that it was ready for filming.  Well, once I got there, I realized there was no disk inside!  Arrrgh…  I did feel a bit silly!

Maysa did cry during the DSi.  Having that little sock over her head wasn’t her thing, plus, she wouldn’t sit up which made things a little harder.  Her long hair was also hard to tuck in under the sock.  Her sister, Soraya, came with us today and was really good.  She did tell me that she felt sad, though, to see Maysa cry.  How sweet!  Amber and her team got it after a second try and the drama was all over. 

I really liked looking at the comparison between the two DSi.  Her head has rounded out quite a bit (ok, a lot) at the bottom.  The right profile shows it the most and I couldn’t be happier.  The top view also shows that she has gained some length.  Really, this whole experience with Cranial Technologies has been fantastic and so uplifting.

Our fit appointment is scheduled for February 2nd.  Amber suggested that I bring my camcorder (with a disk this time) and that I could record the difference between the two DSi on their computer screen.  I’d love to do that and share it here on her blog.  I’ll just have to make sure that the camcorder IS ready for filming this time.

Today was a good day…

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