Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Posts Tagged ‘cyst’

It’s most likely a dermoid cyst

Posted by mymaysa on January 8, 2009

A few months back I posted on the Yahoo Plagio Group about a bump that started popping out on the back of Maysa’s head. It started the size of a pea and is now the size of a knuckle. You certainly cannot see it because of her hair but you definitely can feel it.

I remember mentioning to her previous orthotist about a dent in that same area while she was in her passive helmet. He assured me that it was just a imprint like those left by the elastic of a sock on an ankle and that it would go away once she would be out of the helmet. I always thought that the padding on that lower right corner of the helmet had something to do with it, like it was digging a hole in her skull, but he didn’t think so.

Well, it looks like the dent led to a bump and it grew bigger the moment we got her out of her passive helmet. We mentioned it right away to Amber from CT who at first thought it was a lymph node but then thought that it felt too hard. I also took her to Kaiser to have it checked out and posted a message on the Yahoo Plagio Board again, but nobody could tell me exactly what it was. At Kaiser, they just told me that it didn’t look too serious. Well how reassuring is that? I wasn’t satisfied with that answer, so her pediatrician referred us to a neurosurgeon, John Myseros, in Fairfax, VA.

We paid him a visit yesterday. After his clinical assistant came and took a bunch of notes and measurements, he came in, felt her head and said: “That’s a dermoid cyst”. I asked him: “what’s that?” and he said that it a piece of skin and other components trapped between her skull and her outer skin. He then drew it on a piece of paper. This is my best representation of it (look at Figure 1):

He said that it could also be the way her skull is shaped in that area, plain and simple, but in case it is in fact a dermoid, that it could be something to worry about if it is lodged too deep inside the skull bone. In certain cases, he also said that a dermoid can be touching the brain like in Figure 2:

He also said that although she was most likely born with, he believes that the way her previous passive helmet sat on her head could have probably made it worse by rubbing against it. In any case, he wouldn’t be able to tell for sure unless he took a CAT scan of her head. He gave us a referral but it’s now up to us to decide whether we want to go forward with it or not…

dermoidf1f21
One more thing: John Myseros was absolutely against helmet treatment for plagio/brachy. He said it was all purely cosmetic and that in no way did the shape of the skull affected the functionality of the brain or any other parts of the body. I could barely place a word, he was going on and on about it… He told me that Maysa looked fine to him. I said, well, she started with a CI of 98% and he said: “So what?”.  At that point, I knew there was no use talking to him about plagio or brachy anymore.

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