Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Posts Tagged ‘craniosynostosis’

Baby Miguel…

Posted by mymaysa on April 12, 2010

I saw Baby Miguel on Friday.  His daddy brought him to work.  Miguel is 6 months old and has/had craniosynostosis.  Despite his parents concerns, he went undiagnosed by his pediatricians for a long time.  When his daddy first told me that he was going to have to wear a helmet, the clear type, I got worried.  Then he explained to me that he didn’t have plagio or brachy and that post operation, he would have to wear one of the clear ones from Starcranial in Columbia, MD.  I felt much better then.  I have nothing but good things to say about that place and the people who work there.  I knew that as long as everything went well with the operation, he would be in good hands with Laura Plank and Orthomerica.

So, it’s been just about a month since Miguel got his helmet.  When I saw him on Friday (unexpectedly), I had to hold him and give him an extra special hug.  Of course, after drooling over his cute little face and chubby puffy cheeks, I checked out his helmet.  It was a beautiful helmet.  The shape of that helmet was flawless.  It camed down just barely above his eyebrows.  The contour around his ears WAS traced right around his ears.  It came ALL THE WAY down to the base of his neck.  It was beautifully and perfectly ROUND in the back and just the right width and length.  A perfect ratio!  It also had a few holes and the pads (two at the sideburns and two in the back were extremely soft and clean).

Really, I almost cried I was so happy to see him wearing such a well-fitted helmet.  I haven’t seen Miguel’s latest scan.  Daddy keeps forgetting to swing it by, but from what he told me, he’s made great progress already.  To tell you the truth, when daddy took off the helmet for me to look at, Baby Miguel’s head looked pretty darn good to me!  He needs to grow in width a little more, but considering his age, I have absolutely no doubt that nobody will ever be able to tell that he’s ever had surgery or that he had to wear a helmet (for a year, they are saying).

I’ve never given a really good review about passive helmets, namely Maysa’s passive helmets (kidcaps) from ECA.  However, thumbs up for the one from Starcranial in Columbia, MD.  I wish I could put the two side by side.  It’s like night and day.  Maybe I’ll ask daddy to let me have it for a photo shoot once he’s done with it…

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