Maysa's Blog

Our journey through plagiocephaly and brachycephaly

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Bootiful Halloween 2011

Posted by mymaysa on October 31, 2011

What a great day and night Halloween was this year!  I always worry about the weather being too cold, rainy or windy, but not this year.  We had some sun, no wind and it wasn’t terribly cold!

Since Maysa saw her sister perform in the dance performance The Beauty and the Beast, this past summer, she’s wanted to be Belle for Halloween.  We’ve been working on her costume for a long time but we did it.  Maysa was Belle for Halloween and her sister was Rapunzel, so once again, my princesses were princesses, and once again, they were fit for it.

Below are a few pictures of Maysa and her sister at Mount Vernon where we went for a photo shoot.  Our beloved photographer, Jennifer Wells, has moved out of the area but I think my husband and I did a pretty good job at capturing some really great memories…

Here is my favorite of the two of them together:

Rapunzel and Belle 2011

Here is another one of Maysa sitting on the grass with her warm yellow cape and sweet smelling red rose…

Maysa Belle with her Cape and Rose

And another one of my favorites…

Maysa in Belle Dress

I also love this one.  Maysa was giving us silly smiles and her sister couldn’t stop giggling.  Love it!

The next morning, it was Maysa’s Halloween parade at her preschool.  As one of her teacher put it, she was the Belle of the Ball.  She wore her cape as they paraded on the street and smiled the whole time.  She also posed for pictures, waved and twirled, just like a real princess.  She loved it, and well, so did I!

Maysa Belle at her Preschool

Maysa Belle Parading

Back at the preschool, they had a party.  I did have to take off her petticoats so she could sit.  She had a lot of fun and the food was so yummy, especially the cookies and the cheetos…

Bon Appétit, Maysa Belle!

And here is one last one to show off her perfect Belle bun.  I did it myself.  Not bad huh?

Belle Bun

Both Maysa and her sister went trick or treating that night.  Their cape kept them warm and their princesses’ shoes made it so that we didn’t have to go through the entire neighborhood 😉

What a BOOTIFUL Halloween it was…

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Hello 80’s…

Posted by mymaysa on January 27, 2010

I can’t wait another day to start blogging about what happened yesterday.  Eight months ago, yesterday, Maysa graduated from her DOC band.  Eight months ago, yesterday, Maysa was 16 months old and not much more could be done about what was remaining of her plagio/brachy.  Eight months ago, yesterday, I was happy with the results but had wished for a little more.  According to Maysa’s last scan from April 2009, her CI was at 93% and we were told not to expect much more…

That was over eight months ago.

Yesterday, Maysa went for one more scan, and what we got on her report this time was far better than what I expected, although if you look at my post The ruler, you’ll notice that I was actually right on the dot as far as what I thought her measurements were.  The bottom line is that at level 3, her CI is now at 88.4%.  That is a drop of 4.6% eight months after treatment in a child that is now 2 years old.  No CST, no other alternative treatment, simply a faithful pony tail at night and no more back to sleep.

I will be posting her reports in another post, but for now, here are her numbers from April 2009 to January 2010:

Circumference: 500.8 to 521.9
Cranial Breadth: 152.7 to 153.8
Cranial Length: 164.2 to 174.1
Diag 1 – Diag 2 = 5.1 to 4.7

Bottom line is that her head barely grew in width, she grew almost 10 mm in length and her plagio improved by 0.4.  We are finally in the 80’s and to tell you the truth, I don’t see any asymmetry anymore, front or back…

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18 months old today!

Posted by mymaysa on July 15, 2009

I took Maysa to her 18 months check up this morning.  She was as happy as happy can be until the shots that is.  It looks like she is doing great.  Her ped didn’t mention one thing about her plagio/brachy and neither did I.  Instead we focused on what we call her “stress moves”.  In a much earlier post, I had written about how Maysa gets tense, crosses her legs at the ankle, brings her arms close to her chest, and gets stiff.  She also breathes hard when she does that.  If you let her, she’ll do it for 15 minutes or more.  I don’t really know as we usually get her out of it after a few minutes.  It concerns me quite a bit.  She has been acting like this since she was about 4 months old.  While there are times when we think it’s a thing of the past, it always seems to come back.  The ped gave us a referral for an EEG.  She wants to rule out the possibility that she is having seizures…

On the charts, she is between 98 and 99% for her head, height and weight measurements.  We were told to cut down on the milk and the portions of food!  That might be hard.

Not much else besides this picture below and the fact that I am enjoying my time off with her very very much!

maysa_18_months_old

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Some recent pics

Posted by mymaysa on April 8, 2009

Here are some pictures taken last week around dinner time:

Dinner, please!

Dinner, please!

Yum

Yum

Glup

Glup

Ahhh!

Ahhh!

 In this one, I am actually getting upset because she is splashing water all over the bathroom and at the camera while I am trying to take pictures of her.  SHE, on the other hand, thinks it’s the funniest trick she could pull on me.  Look at her smirk!

Smirk

Smirk

 

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Mid DSi

Posted by mymaysa on April 8, 2009

8:00 AM this morning, Maysa and I go in to see Amber.  She (and the whole world) knows that I regularly take Maysa to Orthomerica for scans and I’ve showed her previous ones before.  I briefly explain to her what Laura Plank showed me on the graphs yesterday and I express my concerns to her as to the fact that the numbers seem to say that her plagio has regressed by 3mm while in fact I was hoping they would be at 0mm.  We also talk about her Cephalic Index (CI) although that one didn’t get worse.  She honestly says that she is not apt or qualified to read the scans but that “Tim” (I forgot his last name) who is their tech guy in Arizona has asked her to go ahead and do a mid DSi of Maysa’s head so he can analyze the data better and comment or act upon it.  This is the first time they do a mid DSi so I do feel a little weird about it, but at the same time I appreciate how they are listening to my concerns and going the extra step to help address them.

I need to know that I (and everyone else involved) is doing everything possible to help my little Maysa.  Am I a mother or what???  Talking about being a mother, Amber’s daughter also wore a DOC band for a little while so we had a little chat about the fact that she still sees the imperfections in her head shape and that I will always see them in Maysa and others as well.  She just wishes that her daughter had as much hair as Maysa.  I totally understand that at this point, they can only help and not fix and that sooner or later, I’ll have to come to terms with it all.  I know that, but we have 5.5 weeks left in the band.  Let’s make the best of it! 

I probably won’t hear from Amber or Tim until early next week.  How many more gray hair do you think before then?  Of course, I will keep you posted!

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Cranky during Cranial Sacral Therapy

Posted by mymaysa on December 29, 2008

I took Maysa to her 4th cranial sacral therapy treatment this morning. She was cranky. Well, she’s been cranky for the past few days. I think that she is teething again. She hasn’t been eating or sleeping properly lately and those two areas are usually not a problem.

Anyway, Frances spent a good 40 minutes doing what she does best using her hands and a great deal of concentration. Maysa was annoyed and cried for the most part. She didn’t want to lay down on her back. Oh! By the way, she has been crawling forward since this past Wednesday. I am so happy about it. She is 11 and a half months and at that age, most babies start walking. Mine, is shyly starting to crawl forward… What a milestone!

I printed out for her the progress pictures I got from CT and was very pleased with the results as well. We are scheduled for another visit on 01/21.

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Cranial Sacral Therapy – 3rd Appointment

Posted by mymaysa on December 10, 2008

Right after we saw Amber at CT on Monday we took Maysa to Frances for another CST appointment.  She did what she usually does: she uses her hands and puts pressure on her head, back, hips and rib cage.  She said that Maysa still felt quite tense to her and she would like to see her in another two to three weeks.  I was hoping that we were done but then again, Maysa’s head has been reshaping so well.  Is it strickly the DOC band?  Is CST truly helping?  I will never know for sure, but I am trying hard to use all options available.

One more thing, Maysa’s stress moves have come back full force.  It’s quite a site and I really don’t know what to make of them.  She crosses her legs at the ankles, if she is sitting on her high chair, she holds on tight to the its arms, she tightens her jaw shut and she stresses…  If she is on the floor or in her crib, she’ll hold on to something or just puts her fits together and look so stiff. 

I don’t know what it means but it doesn’t seem right.

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