Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Exotropia, not better, not worse…

Posted by mymaysa on January 4, 2011

We had our follow-up appointment yesterday with Maysa’s eye doctor.  She never gave me a hard time getting there.  In fact, she was all happy and excited.  She remembered the “games” he played with her last time and was looking forward to it again.  This girl really cracks me up.  As soon as he said “Hi” to her she replied back with a “Hi Dr. Dorito”, knowing exactly what SHE was saying.  I don’t think he knew though as his name is Dr. Territo…

Ok, so back to the point now.  Dr. Territo played another few “games” with her very similar to the ones he used last time.  He also asked me whether or not I thought things had improved, worsened or remained the same.  From what I can see, Maysa’s eyes still wander off when she is “thinking away” which means when she is thinking about or talking about something that is being pictured in her head.  Her eyes are not focused on anything in particular.  It is all happening in her mind.  The moment you call for her attention, she refocuses right back on you or a specific object.  He saw the same thing as well.

The doctor also said that her vision was perfect and that there was no weakness in neither one of her eye muscles.  He said that the fact that she has the ability to refocus on her own were all good things and didn’t think that she was a candidate for patching.  He also said that she is far from being a candidate for surgery.

Dr. Territo also said that often people with a history of plagiocephaly/brachycephaly exhibit signs of strabismus and that people with this condition often learn to control it as they grow older.  Shame on those who think that it is only cosmetic!

So what are we left with?  Another appointment, 6 months from now, to see how things are progressing.  Maysa will be 3 and a half then.


2 Responses to “Exotropia, not better, not worse…”

  1. Tami said

    Would you be willing to email me so I could ask you a few questions? I just came across your blog today looking for info on infant head shapes and helmets. My baby is 6 1/2 months old, and his head looks so similar to your daughters at that age. Thanks!

  2. jeff said

    Hi, I’m a concerned parent with a son who just finished treatment with a doc band. Daniel is almost 12 mo. old and they said he is done with treatment due to his age. His head still looks very flat. He started treatment at 8 1/2 mo. I’ve been looking through your blog and saw photos of Maysa’s head that are labeled “in doc band at 16mo.” Her head looks perfect now, by the way. How old was she when she got her last doc band? Did her head already look so round by 12 mo.?

    I’m sure you understand what it’s like dealing with doctors who just don’t seem concerned or very informed. I was wondering if you could contact me so that I could ask some quick advice. I really want to act as quickly as possible if there is more I could or should be doing.

    thank you very much!

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