Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Archive for January, 2010

The latest report(s)…

Posted by mymaysa on January 28, 2010

There are a few things you all need to know before you look at the reports: 

  • First of all, we didn’t see Laura Plank so the reports that I have do not reflect a comparison between now and her April scan.
  • The orthotist we saw was really nice and compationate and we actually didn’t have to pay a penny for the time he spent with us or the reports he handed us.
  • Right before he scanned her (and Maysa was screaming her lungs out and mad at the world) he told us that because of the thickness of her hair we were most likely to see a flat area on the scan.  To tell you the truth, I thought he was going to say that he wouldn’t be able to scan her BECAUSE of her hair.
  • To reassure me that her head wasn’t flat at level 3, he also gave me a level 2 report that shows how round it is right below level 3.  As you can see below, there is no way (anymore) that her head could be that flat at level 3 to then be round again at level 2
  • Also, remember that Maysa’s flat spot was never on the back left side but rather on the back right side.  So, in other words, ignore the flatness you see in the level 3 report.
  • At home, when I overlaid the scans (January and April), I found that the January scan was a little bit off-center, a little too much to the right and that is probably why her right side looks fuller than her left in that one.

Now, here are the reports:

Level 3 Report:

So, first of all, I removed some info at the top and added in the “Shape 2” column her numbers from the April scan.  Again, as you can see, she grew over 2cm in circumference.  She only grew about 1mm in width and almost 10mm in length.  Her plagio also got slighty better, although in real life it looks even better, and most importantly her cephalic index is down to 88.4% at this level (Level 3).

Now, in the Level 2 report below, you’ll notice how much rounder her head is in the back.  Non of that  non-sense flatness that you can see in level 3:

You might also be wondering why her ears look funny.  That is because her hair was sticking out a little on the right hand side.  The cranial breadth changes at that level but the orthotist told me that it was mainly because of the ears that show at that level.

One thing I am still not sure of is where her head actually grew in length.  When I overlay the April and the January scan, most of the growth seems to have happened in the front and a little bit in the back.  I never thought that her head would grow that much up front.  It is hard to say because the center point of the two scans are a bit off center.  That is really matter: No.  What matters is that we have an oval looking head that is not flat anymore with such little asymmetry.

Can you believe that the report below belongs to Maysa?

Posted in Maysa, Orthomerica, Pictures, post DOC band | Tagged: , , , , , , , , , , , , , , , | 5 Comments »

Hello 80’s…

Posted by mymaysa on January 27, 2010

I can’t wait another day to start blogging about what happened yesterday.  Eight months ago, yesterday, Maysa graduated from her DOC band.  Eight months ago, yesterday, Maysa was 16 months old and not much more could be done about what was remaining of her plagio/brachy.  Eight months ago, yesterday, I was happy with the results but had wished for a little more.  According to Maysa’s last scan from April 2009, her CI was at 93% and we were told not to expect much more…

That was over eight months ago.

Yesterday, Maysa went for one more scan, and what we got on her report this time was far better than what I expected, although if you look at my post The ruler, you’ll notice that I was actually right on the dot as far as what I thought her measurements were.  The bottom line is that at level 3, her CI is now at 88.4%.  That is a drop of 4.6% eight months after treatment in a child that is now 2 years old.  No CST, no other alternative treatment, simply a faithful pony tail at night and no more back to sleep.

I will be posting her reports in another post, but for now, here are her numbers from April 2009 to January 2010:

Circumference: 500.8 to 521.9
Cranial Breadth: 152.7 to 153.8
Cranial Length: 164.2 to 174.1
Diag 1 – Diag 2 = 5.1 to 4.7

Bottom line is that her head barely grew in width, she grew almost 10 mm in length and her plagio improved by 0.4.  We are finally in the 80’s and to tell you the truth, I don’t see any asymmetry anymore, front or back…

Posted in Uncategorized | 3 Comments »

For Petra

Posted by mymaysa on January 23, 2010

Petra asked me some really good questions on Babycenter and the best way for me to answer them is by creating another post.    Here is what she said in her post:

“Leila, Maysa’s head seems to be doing better and better. I am curious as to how you feel about the growth after the helmet came off. Do you feel that her head has grown equally all around or more to the back than her sides? And if so how has she been sleeping since the helmet, sides, stomach or on her back?”

In my previous post, the ruler, I posted a comparison picture of Maysa’s head from the time her plagio/brachy looked at its worse to the way it looks now.  In the one below, the comparison is between the way her head looked two weeks prior to graduating from her 2nd DOC band and now.  Notice that the horizontal rulers on both pictures indicate the same width.  However the vertical rulers indicate that her head has gotten a tidbit longer since May.  Overall, it also has taken on a slightly different shape.  Her ears have moved back.

So in the picture taken in May 09, I come up with a cephalic index of 92%.  In April, her report from STARcranial showed a cephalic index of 93%, so pretty close…

These are my own pictures and my own calculations and might be totally wrong for all I know, but I truly believe that things have slightly improved since the band came off.  I do have to say that she always sleeps with a pony tail right in the back to make it uncomfortable for her to sleep on her back.  So to answer the rest of your question, Maysa, who used to be a back sleeper even while in her DOC bands, only sleeps on her tummy now or on her sides, hardly ever on her back.

Also, while her head is still wider than that of her 4 year old sister, it doesn’t jump at you anymore, nor does the fact that her head is not as round as most little girls her age.

Posted in Maysa, Pictures, post DOC band | Tagged: , , , , | 4 Comments »

The ruler

Posted by mymaysa on January 23, 2010

Like I mentioned before, I don’t take that many CT style pictures of Maysa’s head anymore.  We’ve been done with treatment for months now and honestly, her head looks so good, I don’t think about taking that kind of shots anymore.  Yet, I can’t help but wonder what her measurements would be today.  So, I pulled out one of her worse top view picture from July 08 and compared it to one taken three days ago (January 10).  I then overlayed a ruler on top of each picture (vertical and horizontal) and did some math.  Here are the pictures I’ve been comparing:

So, just so you know, the measurements on those rulers are not accurate.  In other words, in the July picture, her head is really not 92 mm wide, nor is it 104 mm long in the January picture.  What I actually did was try to use those numbers on the rulers to get an approximate calculation of what her cephalic index was back in July 08 and what it is now a year and a half later.

So:
For the July picture, 92 mm / 95 mm = 96.5%
For the January picture, 92 mm / 104 mm = 88.4%

I also want to add that while I came up with a CI of 96.5% for the July picture, it was most likely worse (around 98%)since the middle and bottom back part of her head at that time were further in compared of the top back part of her head.  I also think that the CI I came up with for the January picture is probably closer to 90%.

Either way, look how much longer her head has gotten, thank God and the people at Cranial Tech for making this happen.

Posted in Pictures | Tagged: , , , , | 3 Comments »

Mirrored Looks

Posted by mymaysa on January 20, 2010

It’s been almost 8 months since Maysa graduated from her 2nd DOC band.  She’s basically been out of it for as long as she has been in it.  She also turned two recently and I keep thinking that things are getting better and better post band…  I don’t take as many pictures as I used to of her head (top view, profile, front…) but I was comparing the two pictures from her 1st and 2nd birthdays, the other day .  She has changed a lot, I think, but while I know she has, it is not until I mirrored the two pictures that it became very obvious to the naked eye. 

So, here are the two pictures I kept staring at.  In the one on the left, she is one and under treatment with the 1st DOC band.  On the left, she is two and done with treatment.  Do you notice the differences?  If you are somewhat like me, you probably do, but if you can’t quite put your finger on it, take a look at the set below this one:

Do you now see what I see?  Look at her ears in the mirror picture when she was one and the right side of her face.  It’s almost like somebody had come and grabbed that part of her face and pulled at it.  That right ear in the mirror picture is higher, her cheek is higher, the bulge over that right ear is also more pronounced.  I never thought back then that she had much facial asymmetry but boy was I wrong…  In the recent picture, her ears are aligned, her head doesn’t seem so wide, and except for one eye looking a tidbit smaller than the other, I would say that her asymmetry is close to zero, at this point.  I also have to say that her face has gotten longer and this has helped with the overall aspect of her head not looking so brachycephalic (wide).

I’ll have to try my best to take more comparable pictures of her head from different angles, but by posting this entry, I just wanted to kind of give an update as to what things look like now in retrospect to a year ago, back when I thought things would never really look normal again.  I do think and know that the DOC band helped fix several things a great deal.  She’s also been improving on her own since…

Posted in Birthday, doc band, Maysa, Pictures, post DOC band | Tagged: , , , , , , , , , , | 3 Comments »

You are now two! Happy birthday Maysa!

Posted by mymaysa on January 15, 2010

 

My youngest princess just turned two today. While she had a blast at her Gymboree party with a bunch of friends and while she got to blow her two candles and eat cupcakes and pizza with them, today, in the intimacy of our home, we had a fun time playing some fancy dress up before blowing out our official 2 year old candles, again…

We pulled out our favorite princess attire. Cinderella was a hit once again and it’s a good thing we have two of almost everything in this house.  You are beautiful, you are bright, and you are sweet for sure.  Mom and Dad can’t kiss and squeeze you enough and you don’t mind it a bit because as soon as we stop, you say “again”.  We love you so much!

Just about three weeks ago, you started speaking in full sentences and it has been a delight listening to you.  Some of the funny things you’ve been saying…

Teeping Booty = Sleeping Beauty (cracks your sister up)
Macaloli = Guacamole
I lob you Daddy = I love you Daddy
Dooty potty = Dirty Potty
Rite poopy = Rice Crispies (cracks your sister up too)
More nope peeze = More milk please (go figure!)
No like it wahger = I don’t want water
Go Pis = Gold Fish

The list is long but I just thought I ‘d write what’s coming to my mind at the moment.  You also know all of your alphabet, upper and lower case.  You know your numbers up to 10.  You dance all the time and know all of your sister’s ballet moves.  You love books and Elmo…

Here are a few of my favorite pictures taken of you and your sister in your Cinderella dresses around your birthday cake.

Girl Talk

 

A Little Dance

 

A Smile

Singing Happy Birthday

Blowing out Candles with a Little Help from Big Sister

Gorgeous, I know...

If you care to look at a few more pictures, click on the scrapbook slideshow below:

Click to play this Smilebox scrapbook: Maysa is now two!

Create your own scrapbook - Powered by Smilebox
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Posted in Birthday, Maysa, Pictures | Tagged: , , , , , | 6 Comments »