Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Archive for August, 2009

Post DOC Band Natural Improvement

Posted by mymaysa on August 25, 2009

I can’t seem to stop posting about the changes that have happened recently in Maysa’s head shape.  Here is another comparison shot.  It is not perfect, I know, it captures her back right profile in an unusual angle but definitely outlines where her head has been growing in the back, don’t you think?  I also want to mention that the picture on the left was taken about a month and a half after she graduated from her 2nd DOC band while the one on the right was taken two and a half months later.

Maysa_back_right_profile_7-13-09_and_8-15-09

Posted in Maysa, Pictures, post DOC band | Tagged: , , , , | 2 Comments »

EEG – Normal

Posted by mymaysa on August 19, 2009

Maysa’s tearful EEG came back normal.  That’s the news the pediatric nurse shared with me today.  It’s a good thing as we now know for certain that her “stress moves” are not seizures, however, we are still puzzled at what is triggering them. 

She hasn’t had a real episode in the past few days.  I just wish they could completely go away…

On a completely different and random note, here are some pictures of Maysa at the park:

8-15-09 park1

 

8-15-09 park2

 

8-15-09 park3JPG

Posted in EEG, Maysa, Pictures, post DOC band | Tagged: , | 11 Comments »

Flat to Squarish to Roundovalish, WOW!

Posted by mymaysa on August 18, 2009

Ok, so while I haven’t taken pictures of Maysa’s head in a while I did take some this weekend and have been comparing them to some older ones.  Here is this set below:

Maysa_left_profile_7-27-08_5-09-09_8-15-09 

 

I outlined her head and trimmed her hair in all three pictures so the focus in on her head shape only and not her hair.  In July 2008, her head is obviously really flat and she has a little bit of a conehead.  In May 2009, she is about to graduate from her DOC band and while it is much much improved, it is kind of squarish overall.  This past weekend, August 2009, her head is round.  WOW!  I am amazed!  She is improving on her own.  What a relief!

Posted in doc band, Maysa, Pictures, post DOC band | Tagged: , , , , , | 3 Comments »

Almost 3 months post DOC band 2

Posted by mymaysa on August 18, 2009

I took some great top and profile pictures of Maysa this week end and though I’d post them for the record.  She is now 19 months old and it’s been almost 3 months since she graduated from her 2nd DOC band.  Here is a top view comparison:

top_view_7-27-08_5-11-09_8-15-09

I feel like her head has filled up in the back, especially the corners.  It has also gotten just a tiny bit longer.  What I really like to look at is how different her head is now from the picture on the left.  That’s what her head looked like about a year ago…

Do you see what I see in the left profile pictures below?  Does her head look rounder AND longer in the back?  I like to believe it does.  Also, I have been putting her to sleep in her crib with her hair combed in a pony tail right in the middle back where her head needs to grow so she would get “uncomfortable” and sleep only on her sides.  If you are reading and have or had at one point long hair, you know what I mean.  So far, so good.  Every time I check on her at night, she is sleeping on her sides, never directly on her back.

Maysa_left_profile_7-13-09_8-15-09

Posted in Maysa, Pictures, post DOC band | Tagged: , , , | 5 Comments »

EEG

Posted by mymaysa on August 13, 2009

Just playing on my big sister's bed!

Just playing on my big sister's bed!

Maysa went to her scheduled EEG yesterday. While it wasn’t painful at all, it was torture. Attaching those electrodes to her head was a nightmare and took forever.

I had to take her right after lunch and right before her nap time, so she was super cranky. Once all the electrodes were in place, I was able to lay down next to her. She drank a bottle of milk and then fell asleep. She was exhausted and she usually takes a 2 to 3 hour nap. Well, about 25 to 30 minutes into her nap, the nurse starts to wake her up. She was zonked out and didn’t hear her tapping loudly on the table, but she HAD to wake up. When she finally did, she cried and it really made me sad. She was so annoyed at the world and begging to go back to sleep. We couldn’t let her.  Not just that, I had to let her cry for a good 5-10 minutes. That is part of the test.

Finally the series of flashing bright lights came. She didn’t like that either… The nurse then came and removed the electrodes, she cried some more. She rinced her hair, she cried some more. I then put her back in her stroller and she walked out of Childrens National Hospital happy again. 

Just in case you wonder why Maysa is getting an EEG, she is been doing those (what we call) stress moves since she was about 4 months old and we don’t know why.  It doesn’t happen every day but when it does, and if we let her, she can go on for over an hour.  She gets on the floor, on the couch or in her crib, lays on the stomach, crosses her arms and sometimes holds her fists, crosses her legs at the ankle and gets as stiff as stiff can be.  She also breathes hard and pulls to stretch her legs even more.  It is so strange, I have no idea what this is all about!  We can get her to stop without her fussing too much but if you turn around, she’ll start all over again.  While we hope that they are not seizures, we are also hoping to get a better idea of what this could be.

Posted in EEG, Maysa, post DOC band | Tagged: , , , | Leave a Comment »