Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Archive for March, 2009

Week 9 in DOC band 2

Posted by mymaysa on March 30, 2009

We are starting our 9th week in our second band.  Once again, Amber shaved off a little more foam off of Maysa’s helmet.  You go girl!!!  She is growing like a weed and walking so fast now, I think she’ll start running tomorrow.  It’s like Spring has sprung.  I am so happy for her.  Her head is really looking round now and she has been such a trooper through it all, even when things looked glum. 

7 weeks left in the band…  We see Amber in another two weeks.  I see the light at the end of the tunnel.

Maysa 14.5 months - week 9 in DOC band 2

Maysa 14.5 months - week 9 in DOC band 2

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Week 7 in DOC band 2

Posted by mymaysa on March 16, 2009

Today, Maysa is starting her 7th week in her second DOC band. Considering that the band is good for a maximum of 16 weeks, she is pretty much half way done with it. Only 8 weeks left. Wow, she’s been in a helmet/band for 8 months and she now has 8 weeks left… It’s almost unreal but for some strange reason, 8 weeks seems like an eternity.

I am ready for the Spring, for cute dresses, sandals, shorts and tank tops, and for curly hair in the sun and butterfly bows. I am ready for her to enjoy being a little girl like all other little girls. I am ready for her head to not feel so itchy or sweaty when the band is off. I am ready to let her have as long of a bath as she wants to have. I am ready to not watch when the hour is up. I am ready to let her hair dry at its own leisure. I am ready to see her eyes and not the band cover them when she looks up. I am ready to run my hand through her beautiful hair and kiss her head without fear of being bruised. I am ready to start taking pictures of her and not her in her band. I am ready to put it all behind us and spring ahead.

Can’t you tell I am ready!

This said, I am so glad she is still wearing it. Maysa is starting to take a few steps on her own and I can’t tell you how good it is to know that her head is not just rounding out but also safe at the same time. Amber at Cranial Technologies and everybody who works there, we owe you!

Ok, back to the present time. Amber placed a little stocking on Maysa’s head and felt the back of it. She compared it the mold and once again she said that her head had rounded out even more. She left us for a little while and shaved it out a little more. When she came back she said that the texture of the foam felt different and that it took her longer to shave off the foam. I wash Maysa’s hair with DOVE and that’s the only way I can get it to smell good. Also, there are times that when the hour is up, Maysa’s hair is still kind of damp. I don’t know if that has anything to do with it. I asked if the band was OK and Amber said yes.

We have another appointment on the 30th.

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The “First” Place

Posted by mymaysa on March 6, 2009

No comment.  Just my own opinion and a picture that speaks for itself.

passivehelmet

Maysa in her passive helmet

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Week 5 in DOC band 2

Posted by mymaysa on March 3, 2009

We actually made it to our appointment half an hour early and were therefore seen about 20 mn early. Amber felt Maysa’s head and said that her head was rounding out really nicely. That only confirms what the way I’ve been feeling about the way she looks. She shaved off the foam a bit more and we are scheduled for another adjustment in two weeks.

Thanks, Amber.

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The Snow Storm

Posted by mymaysa on March 2, 2009

We were scheduled to see Amber this morning for another adjustment. Instead, we stayed home and Cranial Technologies called to say that they would be closed. That’s a good thing because the snow accumulation was really high and we also had gusty winds.

We are rescheduled for tomorrow 9:30 AM.

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