Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Archive for February, 2009

Scheduled for Another Scan

Posted by mymaysa on February 18, 2009

I just called Orthomerica this morning. I scheduled another appointment with Laura Plank to have her scan Maysa’s head once more. She will see us on April 8th. I can’t wait to see what her head shape looks like on paper and what her numbers will tell us then. The last scan she got was on January 5th. Pray with me that her brachy is well below 90% by then.

Posted in Orthomerica, Star Cranial Center of Excellence | Tagged: , , , , , , | 1 Comment »

Week 3 in DOC band 2

Posted by mymaysa on February 17, 2009

Maysa had an appointment yesterday with Amber at Cranial Technologies. She’s been in her new band for two weeks and is doing great. The first week following her initial fit, the band slipped down her eyebrows quite a lot. I constantly had to readjust it. The week after that, it just stopped. It only happens if she pulls at it.

Anyway, Amber drew a square on the foam in the middle back part of the band and said that from now on that was where they would shave off the band. Like I said in a prior post, the foam is really thick and this band is really curved out in the back compared to the first she wore so seeing her shave off some foam out of there is giving me hope that her head will keep rounding out even more.

I caught myself looking at her in the past 3 or 4 days during the hour that the band is off and telling myself how good her head looks to me now. Really. Before, I couldn’t help but notice the sides of her head sticking out and the flatness in the back, especially the back right side. Not anymore. She really looks good to me now and I don’t feel so self conscious for her anymore.

Is her brachy closer to 90% now? How I wish! And, how I wish I could just take her back to Orthomerica now for another scan…

Also, I admit doing something I am not supposed to do: I placed Maysa’s helmet on her 3 year old sister the other day, and guess what? It fit (almost) as well as it does on Maysa’s head. That tells me that if we hit some good growth spurts in the next couple of months, Maysa’s head will really look great once again.

We see Amber back again in two weeks.

Posted in Cranial Technologies, doc band, Orthomerica | Tagged: , , , , | 3 Comments »

Maysa’s DSi 1 and 2 in Video

Posted by mymaysa on February 9, 2009

Alright, so I finally had the time to play with and upload Maysa’s DSi 1 and 2 on Youtube. The quality is not as good as the originial, but that’s the best I could do for now. At the start, Maysa is not so happy that I put her down to pick up the camcorder instead and she starts crying. We offered her a few toys but still didn’t want to have anything to do with them. Once I gave her my keys, she was fine…

Enjoy watching!

Posted in Cranial Technologies, doc band, Maysa, Video | Tagged: , , , , , | Leave a Comment »

Maysa in DOC band 2

Posted by mymaysa on February 8, 2009

Just a few pictures in the new band…

Playing in DOC band 2

Maysa's new DOC band

Profile in the new band

New band, new look!

Posted in doc band, Maysa, Pictures | Tagged: , , , , , | Leave a Comment »

Follow up Visit for DOC band 2 and Band Comparison

Posted by mymaysa on February 4, 2009

We had an appointment with Amber this morning. Since the second band that Maysa received on Monday is only meant to treat her brachycephaly, the protocol is a bit different. Monday and Tuesday we checked for red spots every 3 hours and for two nights she had to sleep without the band on. That was strange. Seeing her in the morning standing in her crib was quite a sight. Her hair was going in every opposite direction on her head, you would have thought that a tornado had passed through. Too bad we are always rushing in the morning or I would have captured it on camera.

The appointment went well. Amber adjusted the front part of the band where her name is and we were on our way. We’ll see her again in two weeks on February 16th. The band is sliding down Maysa’s face quite a bit, but that’s normal. It is so much rounder in the back than the first one and there is a lot of room there for her to grow. Fingers crossed…

If I were to make a comparison between the two bands, this is what I’d have to say:

DOC band 1 looks cuter. I liked how it had that cap going over the right side of her forehead. I always liked decorating that spot first. It also fit better right from the start.

DOC band 2 allows me to hold Maysa’s hair in a fountain at the top of her head. It doesn’t get all sweaty after getting trapped under the cap like with the first band. Also, DOC band 2 to is much rounder in the back. Really, if Maysa’s head rounds out that far and that much, there would be no brachy left in her. Another thing I like about DOC band 2 is that the top back of her head is completely covered as in keeping her head from growing upwards in the back.

In short, I like the curvy design of the first band, but I see the great potential of band 2.

Of course, I will post pictures when I get a chance, and yes, I am still working on uploading that video of Maysa’s DSi.

Posted in Cranial Technologies, doc band, Maysa | Tagged: , , , , , , , | 2 Comments »

Side by Side Comparison of DSi 1 and 2 in Pictures

Posted by mymaysa on February 2, 2009

8:00 AM this morning Maysa had an appointment with Amber.  We went to get her second DOC band.  I am so excited for her, I couldn’t sleep last night. Well this time, I brought the camcorder and the camera. Amber was kind enough to let me videotape and take pictures of the two DSi Maysa has had and now, I get a chance to post them on her blog.

For now, I can only post the pictures.  I’ll upload the video later when I get a chance to play with it and edit it a little:

DSi 1 and 2 - Top View
DSi 1 and 2 – Top View

For some strange reason, the two DSi side by side don’t show, in my opinion, how much Maysa’s head has grown in length.  However, it has and the pictures below will show it better.

dsi1and2backview1

 

Now, you’ll agree with me that this angle shows how her head has filled out at the base of her skull.  The reflection of the light and the shadow make it so obvious.  Also, notice that her head seems narrower.

DSi 1 and 2 Front View
DSi 1 and 2 Front View

In this one, you can also see how her head doesn’t look so wide.  Her head seems to have grown upwards which in turn balances things out.

DSi 1 and 2 Left Profile
DSi 1 and 2 Left Profile

In this one, you can see how her head has filled out at the base.  That’s remarkable, I think!  Look at the one below.  It is my favorite…

DSi 1 and 2 Right Profile
DSi 1 and 2 Right Profile

Ok, so now we are talking.  Bye bye flat spot on the right side.  I am so glad to see you gone.  I won’t miss you either.

So now, let’s hope that the second band, which looks different, will bring even more positive changes to my little Maysa’s head.

Posted in Cranial Technologies, doc band, Maysa, Pictures | Tagged: , , , , , , | 1 Comment »