Maysa's Blog

Our journey through plagiocephaly and brachycephaly

Archive for December, 2008

Maysa now…

Posted by mymaysa on December 29, 2008

Smiling at the Camera

Smiling at the Camera

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Cranky during Cranial Sacral Therapy

Posted by mymaysa on December 29, 2008

I took Maysa to her 4th cranial sacral therapy treatment this morning. She was cranky. Well, she’s been cranky for the past few days. I think that she is teething again. She hasn’t been eating or sleeping properly lately and those two areas are usually not a problem.

Anyway, Frances spent a good 40 minutes doing what she does best using her hands and a great deal of concentration. Maysa was annoyed and cried for the most part. She didn’t want to lay down on her back. Oh! By the way, she has been crawling forward since this past Wednesday. I am so happy about it. She is 11 and a half months and at that age, most babies start walking. Mine, is shyly starting to crawl forward… What a milestone!

I printed out for her the progress pictures I got from CT and was very pleased with the results as well. We are scheduled for another visit on 01/21.

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Progress Report from Cranial Technologies

Posted by mymaysa on December 23, 2008

Maysa has been wearing her DOC band for a little over 7 weeks now and I am so happy with the results so far.  Yesterday, I took her to Cranial Technologies for another check up and to get her progress pictures and measurements taken.  I wanted to post an update on her blog right away but I only got her photographs this aftenoon via email.  The measurements, although manual, look really good.  According to Amber’s measurements, her cephalic index (CI) is now down to 90% and her head width actually went from 143 down to 142.  Again, the measurements are manual and 1mm is no big deal, but at least her head hasn’t gotten wider. 

Anyway, her right profile shows her progress the best.  In the first set of pictures below, you’ll see her right profile from before and while in the DOC band.  In the second set, you’ll see the same pictures but without the pony tail.  I had to trim it so I wouldn’t get distracted by it.  I can’t stop staring at them!

Right Profile with Pony Tail

Right Profile with Pony Tail

Right Profile without the Pony Tail

Right Profile without the Pony Tail

I did the same thing with her left profile pictures.  Removing the pony tails helps see the progress she’s made a little better.  In the pictures below, the progress is a little less obvious but it doesn’t surprise me.  When she originally started to wear the band, there was space where I could slide in my finger towards the bottom left side of her head.  It has filled out in the past 7 weeks she’s been in the band and Amber never shaved anything off of that side.  I think that her goal is to even out the two back sides of her head first (correct the plagio) and then allow for more growth in the back to correct her brachy.
Left Profile with Pony Tail

Left Profile with Pony Tail

 

Left Profile without the Pony Tail

Left Profile without the Pony Tail

Anyway, I couldn’t be happier.  Amber told me that she would probably be in it for another 5 to 6 weeks.  I really would love for Maysa’s CI to go down to 85% or below.  If we get to that point, I would be beyond myself and forever thankful to Cranial Technologies.  Below are all of the progress pictures Cynthia emailed me.

Maysa's Progress Pictures from CT

Maysa's Progress Pictures from CT

We have another appointment with CT on 01/02.  I will also be taking her to Orthomerica in Columbia, MD for yet another head scan on 01/05 (I just have to be able to compare her head shape now with the scan she received on 10/13 using more accurate tools).  On 12/29, we also have an appointment with our DO, Frances Demmerle, for another Cranial Sacral Therapy.  Phew!  Happy Holidays!

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Is it still an optical illusion?

Posted by mymaysa on December 13, 2008

Ok, so I was finally able to find two pictures that I can put side by side and compare.  What do you think?  Is it still an optical illusion or does her head look less round above the ears and consequently less wide?
Head Width Comparison

Head Width Comparison

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Cranial Sacral Therapy – 3rd Appointment

Posted by mymaysa on December 10, 2008

Right after we saw Amber at CT on Monday we took Maysa to Frances for another CST appointment.  She did what she usually does: she uses her hands and puts pressure on her head, back, hips and rib cage.  She said that Maysa still felt quite tense to her and she would like to see her in another two to three weeks.  I was hoping that we were done but then again, Maysa’s head has been reshaping so well.  Is it strickly the DOC band?  Is CST truly helping?  I will never know for sure, but I am trying hard to use all options available.

One more thing, Maysa’s stress moves have come back full force.  It’s quite a site and I really don’t know what to make of them.  She crosses her legs at the ankles, if she is sitting on her high chair, she holds on tight to the its arms, she tightens her jaw shut and she stresses…  If she is on the floor or in her crib, she’ll hold on to something or just puts her fits together and look so stiff. 

I don’t know what it means but it doesn’t seem right.

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Cranial Technologies – Week 5 of Treatment

Posted by mymaysa on December 9, 2008

My husband and I took Maysa to Cranial Technologies on Monday for another check up.  I gave Amber the headsickle back to Amber and asked her why is it that the band didn’t quite fit properly on it.  First of all she told me that I shouldn’t be putting it on the headsickle.  Apparently it weakens the band and consequently makes it less effective.  I didn’t know.  Lesson learned.  I won’t do it again.  I promise.  This said, I did post some pictures under a former post showing how the band looks on the head mold.  You can clearly see that the side where the strap closes looks odd.  The top view also shows how the band is not snug against the mold.

In short, she also explained to us the band is actually made from a different mold and that this wasn’t a good way of looking at things.  What she said did make sense and I feel horrible for trying to make the band fit on the mold.  So if you are thinking about doing this at home, just don’t.

On a happier note, she also told us that Maysa was making faster progress than anticipated for her age.  She told us that she would probably not be in her band for more than an additional five to six weeks which would bring her to a total of two and a half months in the band.  We expected her to be in it for four months!  We have mixed feelings about it.  We know and can see that she has made good progress.  Her right profile shows it the most.  Also, looking straight at her, her ears don’t look bent outwards anymore as if while the band held her head on the sides right above the ears, her facial features from the sideburns/jaw down have expended in width which in turn makes her head look more proportionate. 

I know for sure that the band is working for her but I also believe that Cranial Sacral Therapy has something to do with her making such good progress so quickly.  This said, I don’t think that she is within normal range yet or even close.  CT will take progress pictures and measurements on 12/22/08 for us to look and compare.

Unless she miraculously rounds out completely and gets within normal range, I am almost already preparing myself for a second band.  My husband is not, of course…

Anyway, I will post some more pictures later.

June - October - December 2008

June - October - December 2008

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